The Cystic Fibrosis Foundation, Inc.

The Cystic Fibrosis Foundation, Inc.

The Cystic Fibrosis Foundation, Inc.

Overview
Date Founded

1955

Headquarters

4550 Montgomery Ave Suite 1100 N, Bethesda, MD, 20814, United States

Charitable Causes

Diseases & Disorders
Lung Diseases
Medical Research

Employees (Worldwide)

846

Industries

Hospitals & Patient Services

Company Description

Cystic Fibrosis Foundation is a donor-supported non-profit organization which focuses in the search for a cure for cystic fibrosis. The foundation funds cystic fibrosis research. It also supports and accredits a national care center network recognized by the National Institutes f Health as a model of care for a chronic disease. The company was founded in 1955 and is headquartered in Bethesda, MD.

Contact Data
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Executives & Employees

President & Chief Executive Officer

Executive Vice President & Chief Financial Officer

Executive Vice President, Chief Operating Officer & Secretary

Executive Vice President & Chief Medical Officer

Senior Vice President & Chief Legal Officer

Director of Research

Chief of Strategy

Senior Vice President of Field Management

Senior Vice President & Chief Policy & Advocacy Officer

Senior Vice President of Human Resources

Board of Trustees

Chair at The Cystic Fibrosis Foundation, Inc.

Co-Chief Executive Officer at Evercore, Inc.

Founder at GCP Capital Partners Holdings LLC

Vice Chair, Board of Trustees at The Cystic Fibrosis Foundation, Inc.

Manager at Allinaire Therapeutics LLC

Chairman & Chief Executive Officer at Lexington Hotel LLC

President & Chief Executive Officer at WideOpenWest, Inc.

Chairman Emeritus at Beatty & Wozniak, P.C.

Vice Chairman at The Cystic Fibrosis Foundation, Inc.

Member, Board of Trustees at The Cystic Fibrosis Foundation, Inc.

Paths to The Cystic Fibrosis Foundation, Inc.
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Advisors & Consultants
Consultant

Celerity IT LLC delivers integrated digital solutions. Its solutions include digital experience, enterprise technology, business transformation and talent solutions. It also offers assessment and advisory, business transformation and change realization services. The company was founded by Michael Berkman and Lewis Waters in 2002 and is headquartered in McLean, VA.

Consultant

Threespot Media LLC produces and tests websites and web applications. The company was founded in 1999 and is headquartered in Washington, DC.

Legal Advisor
Advisor

Co-Chairman at U.S. Chamber of Commerce Foundation

Legal Advisor

General Counsel at The Cystic Fibrosis Foundation, Inc.

Consultant
Clients

Vertex Pharmaceuticals, Inc. engages in the business of discovering, developing, manufacturing and commercializing small molecule drugs for patients with serious diseases. It focuses on development and commercializing therapies for the treatment of cystic fibrosis, infectious diseases including viral infections such as influenza and bacterial infections, autoimmune diseases such as rheumatoid arthritis, cancer, inflammatory bowel disease and neurological disorders including pain and multiple sclerosis. The company was founded by Joshua S. Boger in 1989 and is headquartered in Boston, MA.

AbbVie, Inc. is a research-based biopharmaceutical company, which engages in the discovery, development, manufacture and sale of a line of proprietary pharmaceutical products. It is focused on treating conditions such as chronic autoimmune diseases in rheumatology, gastroenterology and dermatology; oncology, including blood cancers; virology, including hepatitis C and human immunodeficiency virus; neurological disorders, such as Parkinson's disease; metabolic diseases, including thyroid disease and complications associated with cystic fibrosis; as well as other serious health conditions. The company was founded on 2013 and is headquartered in North Chicago, IL.

Proteostasis Therapeutics, Inc. operates as a clinical stage biopharmaceutical company. It engages in the discovery and development of novel therapeutics to treat cystic fibrosis (CF) and other diseases caused by an imbalance in the proteostasis network. The company was founded by William Balch, Jeffery W. Kelly, Andrew Dillin, Richard I. Morimoto, Alfred Lewis Goldberg, Daniel Finley, Christopher T. Walsh, and Randall W. King in 2006 and is headquartered in Boston, MA.

Key Stats and Financials As of 2018
Market Capitalization
Total Enterprise Value
Earnings Per Share
Revenue
$276M
Non-Profit Donations & Grants
Non-Profit Donations & Grants Received
$25K
06/30/2019
$5,000
06/30/2019
$800
05/31/2019
Investments
Details Hidden

4D Molecular Therapeutics, Inc. designs, develops and commercializes transformative gene therapeutic products for serious unmet medical conditions. It offers lysosomal storage disease, lung disease, muscular dystrophy, and ophthalmological disease services. The company was founded by David H. Kirn, Melissa Kotterman, Theresa Janke, and David Schaffer in 2013 and is headquartered in Emeryville, CA.

Details Hidden

Proteostasis Therapeutics, Inc. operates as a clinical stage biopharmaceutical company. It engages in the discovery and development of novel therapeutics to treat cystic fibrosis (CF) and other diseases caused by an imbalance in the proteostasis network. The company was founded by William Balch, Jeffery W. Kelly, Andrew Dillin, Richard I. Morimoto, Alfred Lewis Goldberg, Daniel Finley, Christopher T. Walsh, and Randall W. King in 2006 and is headquartered in Boston, MA.

Details Hidden

Altus Pharmaceuticals, Inc. develops therapeutic products for gastrointestinal and metabolic diseases. Its principal activity is protein crystallization which is used to develop therapeutic products for gastrointestinal and metabolic diseases. The company was founded in October 1992 and is headquartered in Waltham, MA.

Suppliers
Corbus Pharmaceuticals Holdings, Inc. Pharmaceuticals | Norwood, MA

Corbus Pharmaceuticals Holdings, Inc. is a phase 3 clinical-stage pharmaceutical company, which focuses on the development and commercialization of novel therapeutics to treat rare, chronic, and serious inflammatory and fibrotic diseases. The Company's lead product candidate, lenabasum, is a novel, synthetic oral endocannabinoid-mimetic drug designed to resolve chronic inflammation and fibrotic processes. Lenabasum is currently being evaluated in systemic sclerosis, cystic fibrosis, dermatomyositis, and systemic lupus erythematosus. The company was founded on December 18, 2013 and is headquartered in Norwood, MA.

Schaner & Lubitz PLLC Legal | Bethesda,

Bares Capital Management, Inc. Investment Services & Portfolio Management | Austin, TX

BCM manages client accounts in long-only concentrated small-cap and mid/large-cap equity strategies. In these strategies, they primarily invest in the equity of US publicly-traded companies. The firm manages concentrated portfolios of common stocks, typically numbering between 8 and 12 positions, weighted heavily in their highest-conviction ideas. BCM identifies candidates for investment using fundamental research. Their research style is most often considered bottom-up, in that they focus on the individual company more than the general state of the economy or overall price to value ratio of the equity markets. The firm considers the financial condition of the candidate as well as qualitative factors relevant to the future performance of the candidate. Their qualitative research focuses on the competitive aspects of the business under consideration and an evaluation of management capability.

Awards & Honors
Rank #41
2014
NonProfit Times - Top 100
Sponsored by The NonProfit Times
Rank #43
2013
NonProfit Times - Top 100
Sponsored by The NonProfit Times
Rank #46
2012
NonProfit Times - Top 100
Sponsored by The NonProfit Times
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